bubbles in a bottle

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Bubbles in a bottle, 25/04/13

i’ve just uploaded a photography project to my daughter’s school – i’ve published these images on a separate page. it was her first major piece of schoolwork in over three months.

photography does not make her pain go away, but it’s a kind of daydreaming – her world glimpsed through bubbles in a bottle.


little by little, bit by bit (7)

after a rotten night, my daughter has had a better day today.

the images below complete a series taken over the past week. the goal, to get her on her feet, outside. she’s taken a photo each day and created a piece of work for school – the first substantial piece of work since all this began in January.

i was skeptical that anything meaningful could result from a situation of such disabling pain – quite literally having to drag her to her feet, and then keep her upright when the pain buckled her knees. i was worried that the effort would pitch her backwards.

but she did it. she’s a brave kid, and i am very proud.

i think her images are remarkable.

| day one | day two | day three | day four | day five | day six |

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little by little, bit by bit (6)

the photos that appear here are building into a series, which my daughter began six days ago.

my daughter is in worse pain today and refusing to take the medicine she has been prescribed. she says she has had enough of it. she says it does not help.

i didn’t think i’d be able to post an image today, it was difficult getting her to her feet and dressed. but she made it to the end of the street and back, and came home with two images. the latter shows my arm – it’s as if she’s seeing me from the perspective of a much smaller child, (smaller than she is in relation to me). it made me cry.

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| day one | day two | day three | day four | day five |


little by little, bit by bit (5)

we drove a short way from home today and returned with three photos and a video.

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it was good to get out and for a handful of minutes we had great fun.

| day one | day two | day three | day four |


little by little, bit by bit (4)

today my daughter had to make do with the camera on my phone. i had hoped that going out with a friend would mean she would go further than to the end of the street and back.

that wasn’t the case.

when i look at the images she has taken, i think they reveal how out of reach the everyday has become. the perspective skews; what was nearby stretches away.

then again, they’re very definitely in her ‘voice’ – and that’s really heartening.

| day one | day two | day three |

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little by little, bit by bit (3)

a difficult day today. but we have this goal, to get my daughter on her feet and outside for a short walk. she’s taking a photo each day for a week, and this will build into a piece of work for school.

| day one | day two |

here is photo three:

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she knew the image she was after, was talking about it as we left the house. i had to put the camera on the ground for her as she can’t bend down.


little by little, bit by bit (2)

yesterday, i wrote about how i’m setting small goals with my daughter. i want to get her on her feet and outside at least once a day.

we walk to the end of the street and back.

as part of this, she is taking a photo a day for the week. here is photo two:

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